Inside the HNRNP Natural History Study
Learn what the Natural History Study is, why it matters for every HNRNP family, and how to take part. Then stick around for a live Q&A with the HNRNP Family Foundation board and research team.
The Natural History Study, explained
Short, family-friendly videos on what the study is, why it matters for every HNRNP-RNDD, and exactly what participating looks like for your family.
Meet the board and research team
The HNRNP Family Foundation board and research team will be there live, including Dr. Maddie Gillentine, our Research Director.
Live Q&A
Bring your questions, or send them ahead of time in the form below, and we will answer as many as we can live.
RSVP for the webinar
It’s free and takes less than a minute. We’ll email you the Zoom link before the webinar.
Can’t make it live? RSVP anyway — we’ll share the recording with everyone who signs up. Want to learn more first? Visit our patient-centered research page.