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Events

Upcoming

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Yellow Brick Road Project Chantilly, France Meeting

Apr 26, 2025, 9:00 AM – Apr 30, 2025, 5:00 PM

Vineuil-Saint-Firmin, 4 Rte d'Apremont, 60500 Vineuil-Saint-Firmin, France

Our friends at the Yellow Brick Road Project are having their second annual France/European HNRNPH2-RNDD meeting! It will be in Chantilly, France at the end of April.

Our Research Director, Dr. Maddie Gillentine, will be attending our partner's HNRNPH2-RNDD focused family meeting. She is able to meet with other HNRNP families and may be able to choose a different location. Fill out the below form to let us know if you are interested!

Apr 26, 2025, 9:00 AM – Apr 30, 2025, 5:00 PM

Vineuil-Saint-Firmin, 4 Rte d'Apremont, 60500 Vineuil-Saint-Firmin, France

2025 HNRNP Family Foundation     Gene Family Meeting

July 27 to July 30, 2025

​Ponte Vedra, Florida, USA

Ponte Vedra Inn & Club​

Our next HNRNP Gene Family Meeting is hosted by HNRNP Family Foundation and Yellow Brick Road Project.​​

The meeting is an opportunity to connect families with services, HNRNP-RNDD researchers and clinicians, and the HNRNP-RNDD community.

Registration is open!

Before you register, all families with HNRNPH2-RNDD must register with The Yellow Brick Road Project. All registrations with HNRNPH2-RNDD that register with the link below will be transferred to The Yellow Brick Road Project.​

 

Register using the link below:

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Got Questions? Email Us:

info@hnrnp.org

Leila Margolis: leila@hnrnp.org

Maddie Gillentine: maddie@hnrnp.org

Amanda Reuther: amanda@hnrnp.org

Past

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HNRNP Family Foundation Virtual Science Symposium

This symposium was the first opportunity to gather HNRNP-Related Neurodevelopmental Disorder experts to discuss the research they are conducting. 

2024 HNRNP Family Foundation Conference & Meeting

Our annual Family Conference and Meeting which gathered the HNRNP-Related Neurodevelopmental Disorder community including researchers, clinicians, advocates, and patients for 2024. 

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 2023 HNRNP Family Foundation Family & Scientific Symposium

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Our annual Family Conference and Meeting which gathered the HNRNP-Related Neurodevelopmental Disorder community including researchers, clinicians, advocates, and patients for 2023. 

Disclaimer: The information provided on this website is not intended to diagnose or treat a disease or disorder. Please direct any medical-related questions to your physician. The HNRNP Family Foundation is not responsible for any errors or omissions on this website.

The HNRNP Family Foundation is a 501(c)(3) EIN 92-2394844

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©2023 by HNRNP Family Foundation.

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