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Our Mission
The HNRNP Family Foundation is dedicated to improving the lives of patients and families around the world that live with rare HNRNP-Related Neurodevelopmental Disorders (HNRNP-RNDDs).
We work closely with dedicated scientists and the medical community to drive patient-centered research. We are committed to finding treatments and creating a neurodiverse affirming community through education and support.
Connect With Us
The HNRNP Family Foundation is hosts numerous events throughout the year.
One annual event is our HNRNP-Related Neurodevelopmental Disorder Conference and Family Meeting where HNRNP-RNDD experts, patients, and community unite to learn, converse, and advance research.
Visit our Events page to learn more and keep connected by subscribing to our newsletter!
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